Lupus?! A wha dat?!

Just another emcee who gets free. Vessel of philanthropic vision fueled by theophilic purpose.

Tag: living with lupus

With gratitude

My sons and I, November 2020.

Three years ago I was in Brooklyn Hospital Center enduring what would become a three month long stay. I would spend Thanksgiving in so much pain that the last thing on my mind was a plate.

Everyday I would rise at 6, read scripture, and worship God while singing along with Richard Smallwood’s “Total Praise.” I would hold on until 9am or so when I knew doctors made their rounds, clamoring for updates on my condition. Could I go home soon? Would I make it home in time for my youngest son’s first birthday? I wouldn’t.

So standing in front of this hospital means another opportunity for me to show gratitude. You don’t have to make it. Tomorrow isn’t promised to any of us. If we’ve learned anything from 2020, impermanence stands at the top of the list. Life is truly a vapor.

Weekly Wha Dat?! March 2nd

Heavy Meddle: I Have Lupus — But My Friends Won’t Cut Me Any Slack

An excellent advice column I stumbled upon. Greatly appreciated this perspective.

Scientists confirm gene mutation linked to lupus

Japanese researchers have confirmed for the first time an association in mice between a genetic mutation and the intractable autoimmune disease lupus erythematosus.

Kilimanjaro climb aims to spread word on lupus

“He wakes up each morning with the pain,” said Bertrand. “His pain is often a 7-plus, and he’s going to experience the pain 24/7 for the rest of his life. Rich was an avid runner, 30 hours per week stuff. Now, he is afraid to exercise for 30 minutes. He is an athlete, but he can only dream of what I did.”

‘I’m still not fully recovered’: Eternal’s Kéllé Bryan pours her heart out on The Big Reunion about being diagnosed with Lupus

Talking about when she was told by the doctor she had the potential life-threatening condition, she said: ‘ I just thought, “So are we talking a week off or something,” and in the end he [the doctor] just went, “You need to sit down … this means you could end up in a wheelchair, you need to take this seriously.”

 

Researcher receives grant to study stem cell death in lupus patients

“Without healthy niches, the bone marrow cannot make normal blood components,” said Lijun Yang, M.D., an associate professor of hematopathology in the UF College of Medicine. “When you stain lupus patients’ bone marrow for dead cells, it is dramatic. In contrast to normal people, most lupus patients’ bone marrows are full of dead cells. Twenty, 30, 50 percent of their cells are dead.”

Open Letter to Judge Judy

Over the last few days many of you have expressed your concern and outrage over Judge Judy’s recent remarks about lupus during her interview on Friday, Oct. 11 on Fox News with Megyn Kelly. We share your outrage and believe that her remarks were insensitive and minimized the impact and suffering of those living with disease. We have taken action and sent a letter to Judge Judy, from Sandra Raymond President and CEO of the Lupus Foundation of America, asking her to retract her remarks.  We are following up with her office, and will keep you apprised of any developments. Below is a copy of the letter that was sent to her office.

http://www.lupus.org/blog/entry/open-letter-to-judge-judy

Jo Koy Brings Tons of Laughter to KTLA and His Journey To Raise Awareness For The Fight Against Lupus

Jo Koy stand up comedian is not only hilarious but he also cares about Lupus and raising  awareness with action.

12 Symptoms of Lupus

12 Symptoms of Lupus

Lupus a debilitating chronic disease

Christopher Smith was a fit and healthy 26-year-old man before a trip to sunny Spain almost cost him his life.

“He was out on the beach almost every day,” said his mother Margaret Moroz.

Upon his return to Niagara, Smith fell ill and was plagued by a number of mysterious symptoms.

“He was very weak, he had mouth sores, he had migraines, skin rashes, his fingertips were turning blue and he had kidney troubles,” his mother recalled.

University of Maryland senior who lives with lupus seeks to remove disease’s stigma

University of Maryland senior who lives with lupus seeks to remove disease’s stigma

“I’ll have lupus forever, unless there’s a cure — and that’s okay,” she said. “I’m still going to find a way to do special education. That’s why I love that caterpillar quote so much — life will carry me through.”

Brian Mooney

Educator, Scholar, Author

The Nerds of Color

Pop Culture with a Different Perspective

Love Dance Hall

Feel the riddim.

Decolonize ALL The Things

The UNsettling reflections of a Decolonial Scientist

Lupus?! A wha dat?!

Just another emcee who gets free. Vessel of philanthropic vision fueled by theophilic purpose.

HIP Literary Magazine

A great WordPress.com site

Soli Deo Gloria

Follower of Jesus Christ. Disciple. Husband. Clemson Alum. Living life in light of eternity.

David Mura · Secret Colors

Writer :: Speaker :: Performer :: Teacher

Mommy CEO

Working and living the Mommy CEO life!

Pro Bono Pastor

Totally free thoughts from a lawyer turned pastor

Different By Design Learning

with Shawna Wingert

Fix-It With Fran

All Things Faith, Family, Food, Fun and more!

black flag theology

a radical approach to theology and politics

%d bloggers like this: