Lupus?! A wha dat?!

Just another emcee who gets free. Vessel of philanthropic vision fueled by theophilic purpose.

Tag: lupus awareness

With gratitude

My sons and I, November 2020.

Three years ago I was in Brooklyn Hospital Center enduring what would become a three month long stay. I would spend Thanksgiving in so much pain that the last thing on my mind was a plate.

Everyday I would rise at 6, read scripture, and worship God while singing along with Richard Smallwood’s “Total Praise.” I would hold on until 9am or so when I knew doctors made their rounds, clamoring for updates on my condition. Could I go home soon? Would I make it home in time for my youngest son’s first birthday? I wouldn’t.

So standing in front of this hospital means another opportunity for me to show gratitude. You don’t have to make it. Tomorrow isn’t promised to any of us. If we’ve learned anything from 2020, impermanence stands at the top of the list. Life is truly a vapor.

Weekly Wha Dat?! March 2nd

Heavy Meddle: I Have Lupus — But My Friends Won’t Cut Me Any Slack

An excellent advice column I stumbled upon. Greatly appreciated this perspective.

Scientists confirm gene mutation linked to lupus

Japanese researchers have confirmed for the first time an association in mice between a genetic mutation and the intractable autoimmune disease lupus erythematosus.

Kilimanjaro climb aims to spread word on lupus

“He wakes up each morning with the pain,” said Bertrand. “His pain is often a 7-plus, and he’s going to experience the pain 24/7 for the rest of his life. Rich was an avid runner, 30 hours per week stuff. Now, he is afraid to exercise for 30 minutes. He is an athlete, but he can only dream of what I did.”

‘I’m still not fully recovered’: Eternal’s Kéllé Bryan pours her heart out on The Big Reunion about being diagnosed with Lupus

Talking about when she was told by the doctor she had the potential life-threatening condition, she said: ‘ I just thought, “So are we talking a week off or something,” and in the end he [the doctor] just went, “You need to sit down … this means you could end up in a wheelchair, you need to take this seriously.”

 

Researcher receives grant to study stem cell death in lupus patients

“Without healthy niches, the bone marrow cannot make normal blood components,” said Lijun Yang, M.D., an associate professor of hematopathology in the UF College of Medicine. “When you stain lupus patients’ bone marrow for dead cells, it is dramatic. In contrast to normal people, most lupus patients’ bone marrows are full of dead cells. Twenty, 30, 50 percent of their cells are dead.”

Children with systemic lupus erythematosus (SLE) had an increased risk for cancer, particularly for malignancies that were hematologic in origin, analysis of data from a large clinical cohort showed.

Open Letter to Judge Judy

Over the last few days many of you have expressed your concern and outrage over Judge Judy’s recent remarks about lupus during her interview on Friday, Oct. 11 on Fox News with Megyn Kelly. We share your outrage and believe that her remarks were insensitive and minimized the impact and suffering of those living with disease. We have taken action and sent a letter to Judge Judy, from Sandra Raymond President and CEO of the Lupus Foundation of America, asking her to retract her remarks.  We are following up with her office, and will keep you apprised of any developments. Below is a copy of the letter that was sent to her office.

http://www.lupus.org/blog/entry/open-letter-to-judge-judy

Jo Koy Brings Tons of Laughter to KTLA and His Journey To Raise Awareness For The Fight Against Lupus

Jo Koy stand up comedian is not only hilarious but he also cares about Lupus and raising  awareness with action.

Kellie Martin Gives Advice for Families Dealing with Lupus

Kellie Martin Gives Advice for Families Dealing with Lupus

Since her sister’s death, Martin teamed up with the American Autoimmune Related Diseases Association to help raise awareness about the symptoms of lupus. Martin said her 4-year-old, Maggie helps her cope with her grief.

“She’s the most joyful person on the planet,” Martin said. “She loves life, and I remember that life can be so good. I go back to the joy and being grateful for every day I have.”

Milwaukee singer raises money for lupus

Milwaukee singer raises money for lupus

By our powers combined…

Image

Peace,

 

So I’m traipsing through youtube clips to get my daily dose of quality theatre when I stumbled across yet again another fantastic macho man promo http://www.youtube.com/watch?v=vlBcsC1v8wA (fast forward to 6 mins or watch the Nature Boy do his thing in the beginning as well.) It furthered my resolve in naming my Lupus Walk team in honor of one of the greatest eras in sports entertainment, the Megapowers.

 

For the uninitiated, here’s a little history: When Hulk Hogan and the Macho Man Randy Savage ruled the world of wrestling, they decided to take it to higher heights and deeper depths and form what should have been the greatest tag team ever known. Though it was quite glorious indeed for reasons artistic and realistic, their partnership would eventually dissolve into a bitter feud.

 

Nevertheless, we have a chance to answer that question posed by both the Bee Gees and Al Green. Yes, we too can mend broken hearts.

 

Please accept this as an invitation to join Team Megapowers (or as the website lists us Team Team Megapowers) and walk/donate with me as we fight the good fight against Lupus, May 5th in Charlotte. 

 

Here’s the website to join Team Megapowers: https://www.kintera.org/faf/search/searchTeamPart.asp?ievent=1007680&lis=1&kntae1007680=B6794245E74240B7B0E7B1FBC96A22F3&supId=355693576&team=5039433

 

Registration: 3:30pm


Walk: 5:00pm

Symphony Park at SouthPark


4400 Sharon Road


Charlotte, NC 28211

I’ll be wearing some shirt in honor of the late great Macho Man and invite you to represent for one of your heroes too. May our powers combine to bring God the glory.

 

Spreading love (it’s the Brooklyn way*),

 

Chris

*Shouts to Jersey too, you know I got nothing but love for you, word to Heavy D.

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