Lupus?! A wha dat?!

Just another emcee who gets free. Vessel of philanthropic vision fueled by theophilic purpose.

Tag: lupus

Senator Morrison Commends the Lupus Awareness Group of Guam

Lupus Walk for A Cure- South Carolina

Lupus Walk for A Cure planned for Saturday

Five Things People with Lupus Should Know Before Starting a Springtime Exercise Routine

http://www.lupus.org/blog/entry/5-things-people-with-lupus-should-know-before-starting-an-exercise-routine

Talib Kweli & Ma Dukes J. Dilla Episode by The Combat Jack Show

http://soundcloud.com/thecombatjackshow/the-j-dilla-episode

Great interview with Talib Kweli and Ma Dukes, mother of the late great J Dilla. About an hour and ten minutes in, Ma Dukes speaks about Dilla’s battle with lupus. As I’ve shared before, Dilla was one of the first people I thought of when I was diagnosed.

DHVI finds lupus antibodies may hold key to HIV cure

http://m.dukechronicle.com/articles/2014/03/27/dhvi-finds-lupus-antibodies-may-hold-key-hiv-cure

Weekly Wha Dat?! March 2nd

Heavy Meddle: I Have Lupus — But My Friends Won’t Cut Me Any Slack

An excellent advice column I stumbled upon. Greatly appreciated this perspective.

Scientists confirm gene mutation linked to lupus

Japanese researchers have confirmed for the first time an association in mice between a genetic mutation and the intractable autoimmune disease lupus erythematosus.

Kilimanjaro climb aims to spread word on lupus

“He wakes up each morning with the pain,” said Bertrand. “His pain is often a 7-plus, and he’s going to experience the pain 24/7 for the rest of his life. Rich was an avid runner, 30 hours per week stuff. Now, he is afraid to exercise for 30 minutes. He is an athlete, but he can only dream of what I did.”

‘I’m still not fully recovered’: Eternal’s Kéllé Bryan pours her heart out on The Big Reunion about being diagnosed with Lupus

Talking about when she was told by the doctor she had the potential life-threatening condition, she said: ‘ I just thought, “So are we talking a week off or something,” and in the end he [the doctor] just went, “You need to sit down … this means you could end up in a wheelchair, you need to take this seriously.”

 

Researcher receives grant to study stem cell death in lupus patients

“Without healthy niches, the bone marrow cannot make normal blood components,” said Lijun Yang, M.D., an associate professor of hematopathology in the UF College of Medicine. “When you stain lupus patients’ bone marrow for dead cells, it is dramatic. In contrast to normal people, most lupus patients’ bone marrows are full of dead cells. Twenty, 30, 50 percent of their cells are dead.”

Remembering Dilla

This past Friday, the 7th, would have been J Dilla’s 40th birthday. Today, 8 years ago, he passed away due to complications from lupus.

When I was diagnosed two years ago he was one of the first people that came to my mind. He lives on through his incredible body of music. Peep the video where Questlove offers insights into Dilla’s method and enjoy a special episode of Crate Diggers that talks about his expansive record collection.

An Unusual Partnership to Tackle Stubborn Diseases

The National Institutes of Health, 10 large drug companies and seven nonprofit organizations announced an unconventional partnership on Tuesday intended to speed up development of drugs to treat Alzheimer’s disease, Type 2 diabetes, rheumatoid arthritis and lupus.

“We are getting together in a way that has not happened before,” Dr. Collins said in an interview. “We are bringing scientists from different perspectives into the same room. They will leave their egos at the door, leave their affiliations at the door.”

 
 

Weekly wha dat?

In the past I’ve made a flurry of posts on Sunday night to share information about lupus thrivers, new medicines and the like. I’ve decided to condense this into one post and share my thoughts where necessary. Let’s see how this goes…

 

Lupus Initiative to receive $2 million in congressional appropriations bill

The Lupus Initiative, a lupus provider education program initiated by the Lupus Research Institute in collaboration with the federal government, stands to receive $2 million in the 2014 Omnibus Appropriations Bill released by Congress.

 

Lupus and Sjogren’s syndrome

New Genetic Clue to Lupus Is Found

Lupus 101: What You Need To Know About Latinas And The Disease

 

Marshall High School’s drama club has worked with numerous organizations to put together a fundraiser for Danielle Tuff, a senior who began home schooling last year after being diagnosed with lupus.

 

An autoimmune disease destroyed a Wadsworth woman’s kidneys, but the travel consultant was not going to let it take away her life, which revolves around traveling. So Dyana Shanahan now packs up a couple of hundred pounds of equipment and solution that provides her dialysis while she sleeps, cleaning out the toxins.

 

LUPUS AND JOINT PAIN: QUESTIONS ANSWERED

“Selena has been going full throttle the past few years and her Lupus is really catching up with her right now,” a source told Popdust. “She knows that she needs to take some time to address the disease and look after herself better if she wants to live a full and healthy life.”

 

RETIRED boxer John Melfah took on some of Britain’s most famous fighters during his long sporting career in sparring contests and title fights.

The Gloucester pugilist, now 53, is now facing his biggest battle yet as he fights back against debilitating disorder Lupus.

The next morning the pain had faded. Normally, I would just move on because with lupus I get all kinds of random pains. Now that I’m pregnant, I wanted to make sure everything was ok, so I called the nurse line. The nurse didn’t seem too concerned and almost talked me into not going in, but she said that if I was concerned enough to call, it might not be a bad idea to come in. So I made an appointment for later that morning with my doctor.

People who suffer from Lupus are more likely to develop certain nutrient deficiencies. It’s important for you to do your best to avoid letting this negatively affect your health.

 

Researchers have identified a genetic mutation that leads to lupus in mice and say the discovery could open the way for development of therapies that target the mutation in people.

I guess it’s tr…

I guess it’s true that life is full of surprises, but for the three years since Joe’s crippling pain was diagnosed as the result of an autoimmune disease called Ankylosing Spondylitis, our life has been full of surprises like this one. Pill boxes, trips to the emergency room, early returns from vacation. Terms like “flare-up” have dropped into our vocabulary. We’ve sat in waiting rooms where Joe was the only person without a walker or a cane. Most of our tears have been over the fact that these aren’t the kind of surprises either of us thought we’d be encountering at such a young age.

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