Lupus?! A wha dat?!
Tag: lupus
March 31, 2014
Talib Kweli & Ma Dukes J. Dilla Episode by The Combat Jack Show
http://soundcloud.com/thecombatjackshow/the-j-dilla-episode
Great interview with Talib Kweli and Ma Dukes, mother of the late great J Dilla. About an hour and ten minutes in, Ma Dukes speaks about Dilla’s battle with lupus. As I’ve shared before, Dilla was one of the first people I thought of when I was diagnosed.
March 2, 2014
Weekly Wha Dat?! March 2nd
Heavy Meddle: I Have Lupus — But My Friends Won’t Cut Me Any Slack
An excellent advice column I stumbled upon. Greatly appreciated this perspective.
Scientists confirm gene mutation linked to lupus
Japanese researchers have confirmed for the first time an association in mice between a genetic mutation and the intractable autoimmune disease lupus erythematosus.
Kilimanjaro climb aims to spread word on lupus
“He wakes up each morning with the pain,” said Bertrand. “His pain is often a 7-plus, and he’s going to experience the pain 24/7 for the rest of his life. Rich was an avid runner, 30 hours per week stuff. Now, he is afraid to exercise for 30 minutes. He is an athlete, but he can only dream of what I did.”
Talking about when she was told by the doctor she had the potential life-threatening condition, she said: ‘ I just thought, “So are we talking a week off or something,” and in the end he [the doctor] just went, “You need to sit down … this means you could end up in a wheelchair, you need to take this seriously.”
Researcher receives grant to study stem cell death in lupus patients
“Without healthy niches, the bone marrow cannot make normal blood components,” said Lijun Yang, M.D., an associate professor of hematopathology in the UF College of Medicine. “When you stain lupus patients’ bone marrow for dead cells, it is dramatic. In contrast to normal people, most lupus patients’ bone marrows are full of dead cells. Twenty, 30, 50 percent of their cells are dead.”
Video | February 10, 2014
Remembering Dilla
This past Friday, the 7th, would have been J Dilla’s 40th birthday. Today, 8 years ago, he passed away due to complications from lupus.
When I was diagnosed two years ago he was one of the first people that came to my mind. He lives on through his incredible body of music. Peep the video where Questlove offers insights into Dilla’s method and enjoy a special episode of Crate Diggers that talks about his expansive record collection.
Aside | February 10, 2014
An Unusual Partnership to Tackle Stubborn Diseases
The National Institutes of Health, 10 large drug companies and seven nonprofit organizations announced an unconventional partnership on Tuesday intended to speed up development of drugs to treat Alzheimer’s disease, Type 2 diabetes, rheumatoid arthritis and lupus.
“We are getting together in a way that has not happened before,” Dr. Collins said in an interview. “We are bringing scientists from different perspectives into the same room. They will leave their egos at the door, leave their affiliations at the door.”
January 19, 2014
Weekly wha dat?
In the past I’ve made a flurry of posts on Sunday night to share information about lupus thrivers, new medicines and the like. I’ve decided to condense this into one post and share my thoughts where necessary. Let’s see how this goes…
Lupus Initiative to receive $2 million in congressional appropriations bill
The Lupus Initiative, a lupus provider education program initiated by the Lupus Research Institute in collaboration with the federal government, stands to receive $2 million in the 2014 Omnibus Appropriations Bill released by Congress.
Lupus and Sjogren’s syndrome
New Genetic Clue to Lupus Is Found
Lupus 101: What You Need To Know About Latinas And The Disease
LUPUS AND JOINT PAIN: QUESTIONS ANSWERED
Quote | December 19, 2013
I guess it’s tr…
I guess it’s true that life is full of surprises, but for the three years since Joe’s crippling pain was diagnosed as the result of an autoimmune disease called Ankylosing Spondylitis, our life has been full of surprises like this one. Pill boxes, trips to the emergency room, early returns from vacation. Terms like “flare-up” have dropped into our vocabulary. We’ve sat in waiting rooms where Joe was the only person without a walker or a cane. Most of our tears have been over the fact that these aren’t the kind of surprises either of us thought we’d be encountering at such a young age.
Lupus?! A wha dat?! 