Lupus?! A wha dat?!

Just another emcee who gets free. Vessel of philanthropic vision fueled by theophilic purpose.

Tag: SLE

Weekly Wha Dat?! March 2nd

Heavy Meddle: I Have Lupus — But My Friends Won’t Cut Me Any Slack

An excellent advice column I stumbled upon. Greatly appreciated this perspective.

Scientists confirm gene mutation linked to lupus

Japanese researchers have confirmed for the first time an association in mice between a genetic mutation and the intractable autoimmune disease lupus erythematosus.

Kilimanjaro climb aims to spread word on lupus

“He wakes up each morning with the pain,” said Bertrand. “His pain is often a 7-plus, and he’s going to experience the pain 24/7 for the rest of his life. Rich was an avid runner, 30 hours per week stuff. Now, he is afraid to exercise for 30 minutes. He is an athlete, but he can only dream of what I did.”

‘I’m still not fully recovered’: Eternal’s Kéllé Bryan pours her heart out on The Big Reunion about being diagnosed with Lupus

Talking about when she was told by the doctor she had the potential life-threatening condition, she said: ‘ I just thought, “So are we talking a week off or something,” and in the end he [the doctor] just went, “You need to sit down … this means you could end up in a wheelchair, you need to take this seriously.”

 

Researcher receives grant to study stem cell death in lupus patients

“Without healthy niches, the bone marrow cannot make normal blood components,” said Lijun Yang, M.D., an associate professor of hematopathology in the UF College of Medicine. “When you stain lupus patients’ bone marrow for dead cells, it is dramatic. In contrast to normal people, most lupus patients’ bone marrows are full of dead cells. Twenty, 30, 50 percent of their cells are dead.”

“All I could re…

“All I could remember was that the guy on the show had been in a lot of pain and found life very difficult. It was shocking to be told this was what I had – I’d been perfectly healthy just weeks before and now I had an incurable illness. All I could think was, “What have I done to deserve this?”’

The swollen ankles that were a sign Fiona’s body had started to attack itself

Lupus diagnosis often comes ‘out of the blue’

Lesa Taylor is not exactly the stand-around type. A former competitive swimmer, she walks, runs and goes to the beach when possible. She does yoga. She is the divorced mother of three of Cocoa Beach’s best-known athletes: professional skateboarders Adam and Dylan, and skateboarder-surfer Lea Taylor.

She also fights lupus.

SLE patients with discoid lupus erythematosus at risk for other clinical manifestations

SLE patients with discoid lupus erythematosus at risk for other clinical manifestations

Patients who had discoid lupus erythematosus and systemic lupus erythematosus were at increased risk for photosensitivity, leukopenia and anti-Smith antibodies and decreased risk for pleuritis and arthritis, according to study results.

Mom, daughter duo tackle lupus together

Mom, daughter duo tackle lupus together

“During our struggle with lupus, God has truly blessed us,” said Tucker. “Through much prayer and faith, we’ve made it this far, and even though I have lupus, my main focus and concern has been for my beautiful daughter who has the more serious form of this disease. I’ve watched her fight many battles — always with her beautiful smile and never complaining. Her testimony is my strength.”

Investigational New Lupus Drug Shown Safe and Effective in Trial Led by Dr. Daniel Wallace, S.L.E. Lupus Foundation Board Member

Investigational New Lupus Drug Shown Safe and Effective in Trial Led by Dr. Daniel Wallace, S.L.E. Lupus Foundation Board Member

The new drug in development, epratuzumab, was shown effective and well tolerated in a Phase 2 trial led by world-renowned lupus expert Dr. Daniel Wallace, member of the Board of Directors of our New York organization, the S.L.E. Lupus Foundation.

NEWS EMA Publishes New Lupus Guideline Intended to Spur Development of New Therapies

NEWS EMA Publishes New Lupus Guideline Intended to Spur Development of New Therapies

In a statement released on 5 March 2013, EMA explained that while advancements in care have dramatically reduce mortalities and morbidities associated with the disease, “Many patients still have incompletely controlled disease and progress to end-stage organ failure.”

“Therefore, there is a need for the development of effective medicines to treat this condition,” the agency argued.

Lupus Hits Hardest Among Poor

Lupus Hits Hardest Among Poor

The researchers concluded that the most disadvantaged Medicaid enrollees carry a high burden of lupus. “It is clear that increased resources need to be allocated to this group to target this heightened burden of chronic disease,” they wrote.

No reduction observed in lupus flares following hydroxychloroquine adjustment

No reduction observed in lupus flares following hydroxychloroquine adjustment

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