Lupus?! A wha dat?!

Just another emcee who gets free. Vessel of philanthropic vision fueled by theophilic purpose.

Tag: treatment

With gratitude

My sons and I, November 2020.

Three years ago I was in Brooklyn Hospital Center enduring what would become a three month long stay. I would spend Thanksgiving in so much pain that the last thing on my mind was a plate.

Everyday I would rise at 6, read scripture, and worship God while singing along with Richard Smallwood’s “Total Praise.” I would hold on until 9am or so when I knew doctors made their rounds, clamoring for updates on my condition. Could I go home soon? Would I make it home in time for my youngest son’s first birthday? I wouldn’t.

So standing in front of this hospital means another opportunity for me to show gratitude. You don’t have to make it. Tomorrow isn’t promised to any of us. If we’ve learned anything from 2020, impermanence stands at the top of the list. Life is truly a vapor.

Children with systemic lupus erythematosus (SLE) had an increased risk for cancer, particularly for malignancies that were hematologic in origin, analysis of data from a large clinical cohort showed.

Bless the DJ

We are hoping to raise $20,000 for DJ Official and his family. Anything you can give is heartily appreciated, and the power of prayer cannot be stressed enough in times like these. Please join us in lifting DJ Official and his family up in our prayers.

http://www.hisvoiceglobal.com/?p=2134

Open Letter to Judge Judy

Over the last few days many of you have expressed your concern and outrage over Judge Judy’s recent remarks about lupus during her interview on Friday, Oct. 11 on Fox News with Megyn Kelly. We share your outrage and believe that her remarks were insensitive and minimized the impact and suffering of those living with disease. We have taken action and sent a letter to Judge Judy, from Sandra Raymond President and CEO of the Lupus Foundation of America, asking her to retract her remarks.  We are following up with her office, and will keep you apprised of any developments. Below is a copy of the letter that was sent to her office.

http://www.lupus.org/blog/entry/open-letter-to-judge-judy

Canton Photo of the Day: Supporting Those With Lupus

Canton Photo of the Day: Supporting Those With Lupus

Vicevich, who suffers from Lupus, explained a little about the disease and announced that one day earlier $1 million had been donated toward a planned Lupus Center of Excellence, a patient support facility that would be part of the Hospital of Central Connecticut. 

 

No Need to Fear Lupus Medications

No Need to Fear Lupus Medications

Medications for lupus are called immunosuppressants. They reduce the immune response in a person so that the body doesn’t attack itself.

This study showed there is no evidence of a higher risk of blood cancer among those taking immunosuppressant medications.

Investigational New Lupus Drug Shown Safe and Effective in Trial Led by Dr. Daniel Wallace, S.L.E. Lupus Foundation Board Member

Investigational New Lupus Drug Shown Safe and Effective in Trial Led by Dr. Daniel Wallace, S.L.E. Lupus Foundation Board Member

The new drug in development, epratuzumab, was shown effective and well tolerated in a Phase 2 trial led by world-renowned lupus expert Dr. Daniel Wallace, member of the Board of Directors of our New York organization, the S.L.E. Lupus Foundation.

NEWS EMA Publishes New Lupus Guideline Intended to Spur Development of New Therapies

NEWS EMA Publishes New Lupus Guideline Intended to Spur Development of New Therapies

In a statement released on 5 March 2013, EMA explained that while advancements in care have dramatically reduce mortalities and morbidities associated with the disease, “Many patients still have incompletely controlled disease and progress to end-stage organ failure.”

“Therefore, there is a need for the development of effective medicines to treat this condition,” the agency argued.

Jump on the purple bus, spur lupus funding and research

Jump on the purple bus, spur lupus funding and research

“It is a mystery disease,” said Dr. Keisha Gibson, a pediatric nephrologist at UNC. “I think of lupus as being like the ultimate betrayal of the body. It can affect many different organ systems – it can manifest in many different ways.”

Prednisone works well for range of conditions, but can have many side effects

http://www.cleveland.com/healthfit/index.ssf/2013/03/prednisone_works_well_for_rang.html 

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Lupus?! A wha dat?!

Just another emcee who gets free. Vessel of philanthropic vision fueled by theophilic purpose.

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